Genetic Alliance, Inc
Genetic Alliance transforms health through genetics. We promote
an environment of openness as essential to improving the health of
individuals, families, and communities. Openness forms both the
process and product for Genetic Alliance.
Their goal is to build capacity within the genetics community by
being fluid, dynamic, and efficient; they work to eliminate
obstacles and limitations through:
Novel Partnerships
Genetic Alliance convenes diverse stakeholders - including
disease-specific advocacy organizations, universities, companies,
government agencies, and policy organizations - to explore and
create novel partnerships in advocacy. Our network of thousands of
organizations provides an open space for shared resources, creative
tools, and dozens of timely programs.
Informed Decision Making
Genetic Alliance revolutionizes access to information to enable
translation of research into services and individualized decision
making. We offer technical assistance to organizations, build and
sustain robust information systems, and actively work for public
policies that promote the advancement of healthcare for the common
good.
Individual, Family, and Community Perspectives
Genetic Alliance identifies solutions to emerging problems and
reduces obstacles to rapid and effective translation of research
into accessible technologies and services that improve human
health. In all we do, we integrate individual, family, and
community perspectives to improve health systems.